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TrustNShare: Development of a Blockchain-Based Data Trust Model for Secure and Controlled Health Data Sharing Grounded on Empirical Research

Maatouk, Hamza and Uschmann, Sebastian and Festag, Sven and Schneider, Tim and Weber, Anna and Khoi, Ngo Manh and Bock, Sven and Jonas, Stephan M. and Spreckelsen, Cord and Klan, Friederike (2023) TrustNShare: Development of a Blockchain-Based Data Trust Model for Secure and Controlled Health Data Sharing Grounded on Empirical Research. In: 21st International Conference on Informatics, Management, and Technology in Healthcare, ICIMTH 2023, 305, pp. 238-239. IOS Press. 21st International Conference on Informatics, Management, and Technology in Healthcare (ICIMTH) 2023, 2023-07-01 - 2023-07-03, Athens, Greece. doi: 10.3233/SHTI230472. ISBN 978-164368400-0. ISSN 0926-9630.

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Official URL: https://doi.org/10.3233/SHTI230472

Abstract

Ensuring data quality and protecting data are key requirements when working with health-related data. Re-identification risks of feature-rich data sets have led to the dissolution of the hard boundary between data protected by data protection laws (GDPR) and anonymized data sets. To solve this problem, the TrustNShare project is creating a transparent data trust that acts as a trusted intermediary. This allows for secure and controlled data exchange, while offering flexible datasharing options, considering trustworthiness, risk tolerance, and healthcare interoperability. Empirical studies and participatory research will be conducted to develop a trustworthy and effective data trust model.

Item URL in elib:https://elib.dlr.de/198012/
Document Type:Conference or Workshop Item (Speech)
Title:TrustNShare: Development of a Blockchain-Based Data Trust Model for Secure and Controlled Health Data Sharing Grounded on Empirical Research
Authors:
AuthorsInstitution or Email of AuthorsAuthor's ORCID iDORCID Put Code
Maatouk, HamzaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Uschmann, SebastianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Festag, SvenUNSPECIFIEDhttps://orcid.org/0000-0002-2507-5901UNSPECIFIED
Schneider, TimUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Weber, AnnaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Khoi, Ngo ManhUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bock, SvenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jonas, Stephan M.UNSPECIFIEDhttps://orcid.org/0000-0002-3687-6165UNSPECIFIED
Spreckelsen, CordUNSPECIFIEDhttps://orcid.org/0000-0002-7301-1566UNSPECIFIED
Klan, FriederikeUNSPECIFIEDhttps://orcid.org/0000-0002-1856-7334UNSPECIFIED
Date:1 July 2023
Journal or Publication Title:21st International Conference on Informatics, Management, and Technology in Healthcare, ICIMTH 2023
Refereed publication:Yes
Open Access:Yes
Gold Open Access:No
In SCOPUS:Yes
In ISI Web of Science:No
Volume:305
DOI:10.3233/SHTI230472
Page Range:pp. 238-239
Publisher:IOS Press
Series Name:Studies in Health Technology and Informatics
ISSN:0926-9630
ISBN:978-164368400-0
Status:Published
Keywords:smart contracts, data trust, incentives
Event Title:21st International Conference on Informatics, Management, and Technology in Healthcare (ICIMTH) 2023
Event Location:Athens, Greece
Event Type:international Conference
Event Start Date:1 July 2023
Event End Date:3 July 2023
HGF - Research field:Aeronautics, Space and Transport
HGF - Program:Space
HGF - Program Themes:Space System Technology
DLR - Research area:Raumfahrt
DLR - Program:R SY - Space System Technology
DLR - Research theme (Project):R - Process for data acquisition and quality assurance for AI applications
Location: Jena
Institutes and Institutions:Institute of Data Science > Data Acquisition and Mobilisation
Deposited By: Klan, Dr. Friederike
Deposited On:13 Nov 2023 15:56
Last Modified:24 Apr 2024 20:58

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